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Autor(en): 
  • Darcy Olsen
  • The Right to Try: How the Federal Government Prevents Americans from Getting the Lifesaving Treatments They Need 
     

    (Buch)
    Dieser Artikel gilt, aufgrund seiner Grösse, beim Versand als 3 Artikel!


    Übersicht

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    Lieferstatus:   Auf Bestellung (Lieferzeit unbekannt)
    Veröffentlichung:  Dezember 2017  
    Genre:  Ratgeber 
     
    MEDICAL# Health Policy / MEDICINE# GENERAL / POLITICAL SCIENCE# Commentary & Opinion / POLITICAL SCIENCE# General / POLITICAL SCIENCE# Public Policy / General
    ISBN:  9780062407535 
    EAN-Code: 
    9780062407535 
    Verlag:  Harper Collins (US) 
    Einband:  Kartoniert  
    Sprache:  English  
    Seiten:  336 
    Bewertung: Titel bewerten / Meinung schreiben
    Inhalt:

    Why should you need the government's permission to save your own life?

    Jenn McNary's sons, Max and Austin, were diagnosed with Duchenne muscular dystrophy?a fatal disorder that leads to muscle degeneration and eventually death. Max received access to a clinical trial; Austin didn't. As a result, Max was able to get out of his wheelchair and play on his school soccer team while Austin continued to deteriorate until he could not even feed himself.

    The FDA takes as long as fifteen years to approve a new drug, demanding near-absolute proof of effectiveness before allowing commercial distribution. But this ignores the urgent plight of millions of terminally ill Americans who have run out of approved options?and are running out of time. These patients are not looking for a 100 percent guarantee that a treatment will work for them. They are looking for a fighting chance.

    Author and activist Darcy Olsen, former president of the Goldwater Institute, tells the remarkable story behind the Right to Try movement, the national campaign to give dying Americans access to cutting-edge treatments that are under study but still years away from receiving the FDA's green light. Through their efforts, the number of states with Right to Try laws is now thirty-three and counting.

    The men, women, and children featured in these pages are our own family members, friends, and neighbors. Their heartbreaking, triumphant, and inspirational stories prove the necessity for Right to Try laws. Because everyone deserves the right to try.

      
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